Saturday, September 19, 2009
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Fibromyalgia and Rheumatoid Arthritis
2. I was diagnosed with it in the year: 2007
3. But I had symptoms since: 1998
4. The biggest adjustment I’ve had to make is: not being able to be as alive as I used to be, especially when it comes to playing with my kids.
5. Most people assume: that my conditions are under control because I hide them so well.
6. The hardest part about mornings are: Trying to pick up the baby to get him ready for daycare.
7. My favorite medical TV show is: Grey’s and ER.
8. A gadget I couldn’t live without is: The wonderful jar opener.
9. The hardest part about nights are: It can be hard to fall asleep because of the pain and the feelings of exhaustion.
10. Each day I take 20 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: I am still thinking about them.
12. If I had to choose between an invisible illness or visible I would choose: visible.
13. Regarding working and career: I wish that my conditions didn’t hinder my success, but they do.
14. People would be surprised to know: I am sick because I hide my conditions so well.
15. The hardest thing to accept about my new reality has been: asking for help, but I am learning one day at a time.
16. Something I never thought I could do with my illness that I did was: talk about it, make it known, and push for awareness.
17. The commercials about my illness: make me crazy.
18. Something I really miss doing since I was diagnosed is: just knowing what the day will bring. I can’t plan like I used to because I never know I will feel.
19. It was really hard to have to give up: working out daily and a lot of my favorite foods.
20. A new hobby I have taken up since my diagnosis is: mediating, praying and blogging.
21. If I could have one day of feeling normal again I would: I would run, dance and sing and do all the things I can no longer physically do.
22. My illness has taught me: patience, acceptance and strength.
23. Want to know a secret? One thing people say that gets under my skin is: people who spend money like crazy or don’t take of their bodies.
24. But I love it when people: give to charity and help others.
25. My favorite motto, scripture, quote that gets me through tough times is: Admiration is the daughter of ignorance. ~Benjamin Franklin. I have learned not to admire and to enjoy what life has already given me.
26. When someone is diagnosed I’d like to tell them: It is all about attitude.
27. Something that has surprised me about living with an illness is: how strong I am and how I patient I have become.
28. The nicest thing someone did for me when I wasn’t feeling well was: Told me I was beautiful, smart and funny.
29. I’m involved with Invisible Illness Week because: I want there to someday be cures for my conditions so that my children never have to suffer as I have.
30. The fact that you read this list makes me feel: Happy, that someone else wants to know now important awareness is.
Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at http://www.invisibleillness.com/